Press
Press Releases
- Historic State Funding for Sickle Cell Disease Brings Comprehensive Care to Patients in Kern County – September 28, 2020
- Historic State Funding for Sickle Cell Disease Brings Comprehensive Care to Patients in San Diego – September 29, 2020
- Networking California for Sickle Cell Care Initiative Launches “Neglected No More” – June 21, 2021
- The Sickle Cell Disease Foundation Receives $1,000,000 HRSA Award – August 9, 2021
- Networking California for Sickle Cell Care Holds Inaugural Meeting – August 17, 2021
- First-of-its-Kind Sickle Cell Disease Network Exceeds Goals in Providing Care to Historically Neglected Community – November 8, 2021
- UCSF Fresno Joins NCSCC – April 21, 2022
- Arrowhead Joins NCSCC – April 21, 2022
- Loma Linda/SAC Health System Joins NCSCC – April 21, 2022
- UC Davis Joins NCSCC – April 21, 2022
- UCLA Joins NCSCC – April 21, 2022
- Networking California for Sickle Cell Care Celebrates Accomplishments during Sickle Cell Disease Awareness Month – September 27, 2022
- Networking California for Sickle Cell Care and Tracking California Announce Publication of Study on Sickle Cell Disease Implications in Latinx Californians (ENGLISH PDF)/ (SPANISH PDF) – October 31, 2022
- “Networking California for Sickle Cell” Care Reduces ER Visits, Saves Lives, and Lowers Health Care Costs – February 10, 2023
- Networking California for Sickle Cell Care Announces Newest Clinic at Arrowhead Regional Medical Center – April 14, 2023
- Networking California for Sickle Cell Care Responds to Budget Act of 2024 – July 10, 2024
- Networking California for Sickle Cell Care Responds to Withdrawal of OXBRYTA® (voxelotor) From Worldwide Markets – October 4, 2024
- Networking California for Sickle Cell Care Marks Fifth Year of Transforming Sickle Cell Disease Care – November 27, 2024
Articles
- $500,000 state grant supports care for sickle cell disease patients in the Inland Empire – Loma Linda University Health
- Health care: Sickle cell disease strikes hard at people of color – Capitol Weekly
- ‘They are really afraid’: Fears about COVID-19 are complicating care for patients with sickle cell – STAT+
- Network Makes Progress in California, Adds Goals for Patient Care – Sickle Cell Disease News
- Focus on Sickle Cell Disease is Warranted – and Long Overdue – The Observer
- Young Actor Goes ‘Extra Mile’ to Shine – The Observer
- UC San Diego Health Recognized for Health Equity in Care of Sickle Cell Crisis – UC San Diego Today
- Sickle Cell Disease Foundation supports patients, families in Inland Empire – The Press-Enterprise
- Oakland Doctor Fights For Equity in Research, Treatment – The Observer
- Black Lawmakers Continue To Push For Sickle Cell Action – The Observer
- Patient Is A Fearless Self-Advocate – The Observer
- Campaign Highlights ‘Warriors’ – The Observer
- Navigating life with sickle cell disease: A unique journey over 24 years – Loma Linda University Health
Public Relations
World Sickle Cell Disease Day:
June 19 is World Sickle Cell Day. This international awareness day is observed annually to increase knowledge and understanding of SCD and the challenges experienced by patients and their families. We encourage you to join individuals and communities from across the globe in shining a light on SCD by sharing the social media posts below.
- Join us for #WorldSickleCellDay and together let’s raise awareness, support those affected, and advocate for better healthcare. As a part of @TheNCSCC, we’re providing life-saving care and resources for sickle cell warriors who need it most. Learn more about our network here.
- Today is #WorldSickleCellDay! On this day, we stand united to shed light on the challenges faced by individuals living with #SCD. Let’s honor their strength, and spread knowledge, understanding, and compassion to make a positive impact in their lives. Learn more here.