Outreach & Education Overview
The California Sickle Cell Action Plan identified the need to increase outreach and education about SCD and SCT statewide as one of its top priorities (see Goal 2 and strategies 2.1 – 2.3). Strengthening SC education and awareness was included as a priority in AB 1105, and remained in the appropriation that Governor Newsom signed in June 2019.
Through a competitive granting process that is open to qualified stakeholders, the NCSCC will make available funds to conduct outreach to promote SC education and awareness from organizations and institutions in three priority areas. A separate application is required for each area:
1. Education and Awareness of SCD and its Complications in Healthcare Delivery Systems
2. Education and Awareness of SCD and its Complications in Healthcare Provider Training programs
3. Education and Awareness of SCD in Community Based Organizations
NCSCC will fund projects that will:
- Implement an innovative and robust education mechanism (e.g. lectures and/or workshops on SCD and SCT) to target students/ residents in training such as primary care physicians (family practice and hospitalists), nurses, social workers, case management staff, etc.
- Conduct outreach on SCT and SCD.
- Educate community members to increase awareness of SCT and SCD. Topics should be based on a needs assessment.
- Material development (as needed). Evidence should be provided to demonstrate that materials do not currently exist or are inadequate. Materials are expected to be bi-lingual (English/Spanish).
- Address barriers to access SCD subspecialty comprehensive care.
- Increase capacity for self-advocacy and empowerment among patients and families.
- Provide training and support to adolescents and young adults to increase readiness for transition from pediatric to adult care.
- Demonstrate best practices in patient support and transition or projects that integrate community resources with the clinics in order to overcome challenges which limit the effectiveness of preventative care such as economic status, lack of access to transportation, homelessness, cultural and language barriers.
- Link individuals to social support and clinical services.
April 1, 2020
Letters of Intent should be completed through the online form (see button below).
Click the buttons below for detailed instructions regarding the application process.
NOTE: Documents updated on March 13, 2020.