Clinical Network
The purpose of the Networking California for Sickle Cell Care project is to decrease the mortality and morbidity for Californians with Sickle Cell Disease through increased access to a Regional network of adult SCD skilled subspecialty clinics.
In California, the median age of death for individuals with SCD is 43 years old, which is well below the median age of death for individuals with SCD nationwide at 61 years and the U.S. general population at 84.5 years.
This tragic reality can be impacted with the expansion of the healthcare workforce and outreach and education efforts in strong collaboration with community and patient advocates, and ongoing surveillance to document the burden of disease. Preventative and coordinated care for SCD keeps patients out of the emergency room (ER) and hospital, and leading healthy productive lives.
California lacks knowledgeable providers, intentionally linked in a regional hub and spoke care model for adults with SCD.
In the absence of SCD clinics with infusion centers, preventable pain crises and other complications frequently lead to ER visits and hospitalizations at an estimated cost of $2.4 billion per year in this country. In California a conservative estimate based on the Office of Statewide Health Planning and Development (OSHPD) data for 2014-16, indicates the charges for hospitalization and ER visits for adults with SCD exceeded $226 million. Implementation of the SCD network of regionalized care will have a major impact on California’s healthcare budget and will greatly improve the quality of life for its citizens with Sickle Cell Disease.
This network, working with California’s healthcare institutions of higher learning, will expand the much-needed healthcare workforce of clinicians who are knowledgeable about SCD diagnosis and treatment.
These new clinics and the SCD subspecialty consortium will collaborate with community based organizations (CBO) or offer satellite community programs to reduce social determinants that impede health equity, such as transportation, housing, or translation services, that block access to SCD care and innovative therapies. Importantly, at least 5 new centers funded through this appropriation, along with primary care providers and CBOs will expand the SCD network so that it can serve local geographic areas and surrounding counties based on highest need and demographics.
We are visiting clinics to determine the compassionate staff, resources and commitment of each sight to create a center of excellence for preventative, guideline driven SCD outpatient care. We are simultaneously meeting with leadership in the appropriate Medi-Cal managed care organizations to partner on assuring that these designated centers in the NCSCC will be sustainable and open to all SCD patients and families for many years to come.
Networking California for Sickle Cell Care
Clinic and Community Based Organization Locations
For assistance with contacting NCSCC clinic and community based organization locations, please contact Anthony Wells by email: anthonyw@scdfc.org or phone: 909-371-6050
- Legend:
- Sickle Cell Care Clinics
- Community Based Organizations
University of California, Davis Health
Address: 2279 45th St., Sacramento, CA 95817 (2nd Floor Clinic)
Phone: (916) 734-5959
Adult clinic fax (916) 457-4542 / New patient referrals fax (916) 703-5266
Services Offered: Infusion services (including but not limited to – Port-a-Cath care maintenance, IV hydration, Blood transfusion, Partial manual exchange, IV iron chelation, Outpatient pain management, Crizanlizumab), Apheresis exchange, Clinical trials, Specialty pharmacy Adherence, Therapeutic Services including but not limited to Behavioral health therapy, Group therapy, psychosocial assessments, and Community resource support
Sickle Cell Disease Foundation Satellite Office – Sacramento
Address: Sacramento, CA
Community Health Worker: Keyasia Currie
Phone: (916) 202-2910
Email: keyasiac@scdfc.org
Services Offered: Advocacy, Hemoglobin Trait Follow-up Counseling, SC Crew Transition Program Ages 15-18, Camp Gibbous Ages 15-18, Camp Crescent Moon Ages 7-14, Public Education and Awareness, Medical Referrals
University of California, San Francisco (UCSF) Benioff Children’s Hospital, Oakland
Address: 744 52nd St. Oakland, CA. 94609
Phone: (510) 420 2694
Services Offered: Comprehensive Team Based Care for Adults & Children with Sickle Cell Disease; Family Support; Community and Provider Resources and Education; Infusion Services, including Apheresis Exchange; Research – Clinical Trials, Gene Therapy, Quality of Care and Quality of Life; Specialty Pharmacy; Specialized Pain Management Services and Consultations; Neuropsychological Evaluations; Behavioral Health; New Patient Consults; Bone Health; Bone Marrow Transplantation, Stroke Screening and Treatment; Pulmonary Disease Screening and Treatment; Telehealth Resources; Genetic Counseling
Sickle Cell Disease Foundation Satellite Office – Oakland
Address: Oakland, CA
Community Health Worker: Poppy Dere
Phone: (510) 915-3432
Email: poppyd@scdfc.org
Services Offered: Advocacy, Hemoglobin Trait Follow-up Counseling, SC Crew Transition Program Ages 15-18, Camp Gibbous Ages 15-18, Camp Crescent Moon Ages 7-14, Public Education and Awareness, Medical Referrals
University of California, San Francisco (UCSF) Fresno
Address: 785 North Medical Center Dr West, Suite 203 Clovis, CA 93611
Phone: (559) 387-1900, Fax: (559) 387-1950
Services Offered: Outpatient Comprehensive Care, Transition from Pediatric to Adult Care, Outpatient Apheresis
West Fresno Family Resource Center
Address: 1802 E California Ave, Fresno, CA 93706
Phone: (559) 621-2967
Kern Medical
Address: 1111 Columbus Street, Bakersfield, CA 93305
Phone: (661) 520-1128
Services Offered: Physician Consultation, Pharmacy Consultation, Pain Management, Care Coordination, and Social Services
Hina Patel Foundation
Address: P.O. Box 21443 Bakersfield, CA 93390-1443
Phone: 661-477-5476
University of California, Los Angeles
Address: 100 Medical Plaza, Suite 550, Los Angeles, CA 90095
Email for Appts: rrthomas@mednet.ucla.edu
Phone: (310) 794-4955
Services Offered: Primary care including preventive services and management of co-occurring chronic conditions, Urgent care including advanced nursing services such as IV fluid and medication infusions , Transfusion services and red cell exchange by apheresis, Inpatient care, Intensive care, Bone marrow transplant, Stroke screening and treatment, Pulmonary disease screening and treatment, Orthopedic management for avascular necrosis, Neurovascular disease complications treatment, Pulmonary hypertension screening and treatment, Integrative Health/Psychosocial support, Sickle cell disease research and therapies, including gene therapy and Telehealth Resources
Jeffrey Smith Sickle Cell Clinic
Address: 1670 E 120th St., Los Angeles, CA 90059
Phone: (424) 338-2801
Services Offered: Hematology, Primary Care, Behavioral Health, Full Specialty Services
Sickle Cell Disease Foundation Satellite Office – Los Angeles
Address: Los Angeles, CA
Community Health Worker: Anthony Wells
Email: anthonyw@scdfc.org
Phone: (424) 354-6688
Services Offered: Advocacy, Hemoglobin Trait Follow-up Counseling, SC Crew Transition Program Ages 15-18, Camp Gibbous Ages 15-18, Camp Crescent Moon Ages 7-14, Public Education and Awareness, Medical Referrals
Center for Inherited Blood Disorders
Address: 701 S Parker St, Suite 1000, Orange, CA 92868
Phone: (714) 221-1200
Services Offered: Physician Consultation, Nursing, Physical Therapy, Social Work, Psychology, Pharmacy and Dietician/Nutrition Services
Sickle Cell Disease Foundation Satellite Office – Orange
Address: Orange, CA
Community Health Worker: Ashley Meneses
Phone: (949) 441- 8329
Email: ashleym@scdfc.org
Services Offered: Advocacy, Hemoglobin Trait Follow-up Counseling, SC Crew Transition Program Ages 15-18, Camp Gibbous Ages 15-18, Camp Crescent Moon Ages 7-14, Public Education and Awareness, Medical Referrals
Loma Linda University/ SAC Health System
Address: 250 S G St., San Bernardino, CA 92410 Family Medicine Dept. (first floor)
Phone: (909) 382-7100
Services Offered: Hematologist, Pain Management, Nurse Practitioner, Behavioral Health, Social Work, Community Health Worker, Infusion Program and Apheresis and Support Group
Sickle Cell Disease Foundation Satellite Office – San Bernardino
Address: San Bernardino, CA
Community Health Worker: Yadira Badwan and Morgan Nixon
Phone: (909) 519-2086/(909) 260-6730
Email: yadirad@scdfc.org / morgann@scdfc.org
Services Offered: Advocacy, Hemoglobin Trait Follow-up Counseling, SC Crew Transition Program Ages 15-18, Camp Gibbous Ages 15-18, Camp Crescent Moon Ages 7-14, Public Education and Awareness, Medical Referrals
University of California, San Diego
Address: 200 West Arbor Drive San Diego, CA
Secondary Location: 3855 Health Sciences Drive, La Jolla CA 92037
Phone: (858) 822-6276
Services Offered: Sickle Cell Comprehensive Clinic (MD/APP, Nurse Case Management, Dietician, Social Work and Community Health Worker); Same day infusion program and apheresis
Sickle Cell Disease Foundation Satellite Office – San Diego
Address: San Diego, CA
Phone: (858) 294-2366
Community Health Worker: Diahann Williams
Email: diahannw@scdfc.org
Services Offered: Advocacy, Hemoglobin Trait Follow-up Counseling, SC Crew Transition Program Ages 15-18, Camp Gibbous Ages 15-18, Camp Crescent Moon Ages 7-14, Public Education and Awareness, Medical Referrals
Sickle Cell Disease Foundation
Address: 3602 Inland Empire Blvd b140, Ontario, CA 91764
Phone: (909) 743-5226
Services Offered: Advocacy, Hemoglobin Trait Follow-up Counseling, SC Crew Transition Program Ages 15-18, Camp Gibbous Ages 15-18, Camp Crescent Moon Ages 7-14, Public Education and Awareness, Medical Referrals
Sickle Cell Disease Foundation Satellite Office – San Francisco
Address: San Francisco, CA (Coming soon!)
Community Health Worker: Anthony Wells
Phone: (424) 354-6688
Email: anthonyw@scdfc.org
Services Offered: Advocacy, Hemoglobin Trait Follow-up Counseling, SC Crew Transition Program Ages 15-18, Camp Gibbous Ages 15-18, Camp Crescent Moon Ages 7-14, Public Education and Awareness, Medical Referrals
Sickle Cell Disease Foundation Satellite Office- Antelope Valley
Address: Antelope Valley (Coming soon!)
Community Health Worker: Anthony Wells
Phone: (424) 354-6688
Email: anthonyw@scdfc.org
Services Offered: Advocacy, Hemoglobin Trait Follow-up Counseling, SC Crew Transition Program Ages 15-18, Camp Gibbous Ages 15-18, Camp Crescent Moon Ages 7-14, Public Education and Awareness, Medical Referrals