The University of California, San Francisco in Fresno (UCSF Fresno) and Loma Linda University were funded under the NCSCC Request for Applications.
Below is a summary of the funded projects.
The UCSF Fresno will focus improving Sickle Cell Pain Management in the Acute Care Setting in Community Medical Centers project seeks to address disparities in sickle cell acute pain management through creation of emergency department pain pathway, inpatient pain order set and protocol. The project also addresses healthcare related biases experienced by sickle cell patients through health care provider education. The overall goal is to standardize and improve quality of unbiased care of adult sickle cell patients seeking care in community medical center.
For more information, please contact: Mohammed Bukari, MD at Mohammed.Bukari@ucsf.edu
Loma Linda University’s Improving Quality of Life for Persons with SCD through Resilience and Empowerment (SCD-RE) Program seeks to understand and improve the quality of life (QOL) and patient care experience (PE) of adult sickle cell disease patients (SCDP) and their support networks currently receiving care within the Loma Linda University Health (LLUH) system in order to: (1) inform behavioral health integration and delivery in the newly established LLUH Sickle Cell Center at Social Action Community Health System (SACHS), (2) improve the ED, inpatient and outpatient care experiences of SCDP within the Inland Empire and (3) support the streamlining and coordination of care between the emergency/urgent care departments, hospital inpatient, and outpatient clinics.
The three objectives associated with this goal are to:
- conduct a comprehensive system wide needs assessment with a focus on QOL and PE issues,
- beta test a mobile app to collect daily and weekly QOL data as well as providing the opportunity for real time feedback on the PE during ED/urgent care, inpatient and outpatient care visits and
- co-develop with members of the LLUH sickle cell support group a resiliency-based intervention utilizing the Community Resilience Model plus patient Resource and Empowerment skills (CRM+RE) and examine its feasibility, acceptability, and preliminary effectiveness with 8-10 group members, with the goal of improving the QOL and PE among SCDP and their caregivers.
For more information, please contact: Zephon Lister, PhD, LMFT at email@example.com
The National Association of Hispanic Nurses, Los Angeles Chapter (NAHN/LA) is led by Juana Ferrerosa, PhD, PHN, RN and Angie Millan, DNP, RN, FAAN and meets its mission by being actively involved at the local, state, and national levels on issues affecting the health of Hispanic communities. NAHN/LA’s primary objective for the Sickle Cell Education and Awareness in Hispanic Communities campaign is to raise awareness of Sickle Cell Trait (SCT) and SCD in the multicultural and vulnerable Hispanic Communities in Los Angeles County. The overall goal is to raise SCT & SCD awareness through education of nurses, nurse practitioners (NP) and nursing students through the implementation of a “train-the-trainer” model where nurses, NP’s and nursing students will be equipped with the knowledge, tools, and resources to engage their colleagues and community members in discussions surrounding SCT and SCD. Through the development of a more informed community, NAHN/LA aims to strengthen self-advocacy skills resulting in community members’ ability to seek an early assessment by a healthcare provider.
For more information, please contact:
- Juana Ferrerosa PhD, PHN, RN at firstname.lastname@example.org
- Angelica Millan DNP, RN, FAAN at email@example.com
The University of California, San Francisco – Fresno project is led by Mohammed Bukari, MD (Assistant Clinical Professor, UCSF), and will focus on the establishment of a Transitional/Adult Sickle Cell Ambulatory Treatment Clinic at the Community Cancer Institute of Fresno. With the establishment of a dedicated sickle cell clinic in California’s Central Valley for adults, UCSF Fresno in collaboration with Valley Children Hospital and Cayenne Wellness Center, a sickle cell focused community-based organization, will provide comprehensive care for adult sickle cell patients and pediatric patients graduating to adult care. A half-day clinic, solely dedicated to the unique needs of sickle cell medical care, pain management, and coordination of services will be held twice a month and adjusted as patient enrollment increases. UCSF and Cayenne Wellness Center personnel will become the team that the patients can trust to navigate their complicated condition and will be available to them consistently. The project will provide a clinical learning experience for medical students and residents in the internal medicine and family and community medicine program at the UCSF Fresno campus. All activities will be implemented at the Cancer Institute in Clovis, CA, and under the auspices of Community Medical Centers, the major affiliated partner of UCSF in California’s Central Valley and supported by UCSF’s Hematology and Oncology faculty.
For more information, please contact:
- Mohammed Bukari, MD at firstname.lastname@example.org