As provided for in the State of California Budget Act of 2019, the Center for Inherited Blood Disorders and the Sickle Cell Disease Foundation established a network of sickle cell disease centers, Networking California for Sickle Cell Care (NCSCC), also known as the Sickle Cell Centers of Excellence, in the local health jurisdictions of Alameda, Fresno, Kern, Los Angeles, Sacramento, San Bernardino, and San Diego to provide access to specialty care and improve quality of care for adults with sickle cell disease; support workforce expansion for coordinated health services; conduct surveillance to monitor disease incidence, prevalence, and other metrics; create a public awareness campaign; and provide fiscal oversight of the resources.
Networking California for Sickle Cell Care Responds to The Budget Act of 2026
July 3, 2026 – Today, Mary Brown, President & CEO, Sickle Cell Disease Foundation, and Diane Nugent, MD, Founder & President, Center for Inherited Blood Disorders, issued the following statement in response to Governor Gavin Newsom signing the Budget Act of 2026 (AB 109), providing a $6 million appropriation in FY 2026-27 to the California Department of Public Health for Sickle Cell Centers of Excellence, also known as Networking California for Sickle Cell Care (NCSCC). This funding marks the beginning of a landmark five-year, $30 million commitment by the state to increasing access to high quality, comprehensive care for adult Californians living with sickle cell disease.
